The major project of getting Missy a new set of wheels continues.... after months of trials, the application was submitted just before Christmas and to our surprise we recently received notice that approval had been given for the chair and it can be ordered. This is really great news and we appreciate the assistance. But....ENABLE rejected to fund 3 options on the powerchair which we of course thought were important.
I was keen to appeal the decision and along with the wonderful help of our OT at the Cerebral Palsy Alliance, I supplied extra background examples of why these options were important to Missy's safety and social independance and we have just heard that they will now fund 2 out of the 3 options previously rejected. Unless these government department get appeals and we emphasis we don't just ask for extra accessories for the hell of it but they have a real purpose and are necessary.
Of course the one option - Vertical Lift- was the most expensive about 3K they won't fund, looks like not being able to see over people, always having to look upto people, can't reach items off benches, can't the reach the door/book from a shelf, can't assist in daily chores is just fine for a 9 year old.
Grrr.... we will find a way and she will get vertical lift on her new chair.